Be Involved In Your Care
Your Medical Records
“Getting Your Medical Records” from the Center for Democracy & Technology
Health Information Technology
Health Information Technology information from HealthIT.gov
Researching Your Diagnosis and Medical Testing
The Patient’s Toolkit for Diagnosis and other resources from the Society to Improve Diagnosis in Medicine.
“The Road to Diagnosis – Stories from Patients with Rare Diseases” from Inspire
Excellent Websites to Research your Condition Online from the Center For Advancing Health
Find a Health Library in Your State from Medline
Dental Symptom Checker from the American Dental Association
Internet Resources for Researching your Condition from Trisha Torrey at About.com
Patient Guides and Journals
The Empowered Patient Coalition Patient Journal
My Health Notebook from Johns Hopkins
Patient Care Packet from the Louise H. Batz Foundation
Your Rights as a Hospital Patient in New York State from the New York State Department of Public Health
Taking Care of Myself – A Guide for When I Leave the Hospital from AHRQ
Discharge Planning
Preparing for Discharge from The Empowered Patient Coalition
Your Discharge Planning Checklist from Medicare.gov
Cancer Resources
Cancer Resources from AHRQ
Cancer Checklist and Resources from the R.A. Bloch Cancer Foundation
Cancer Resources from Curetoday.com
Database of Clinical Trials for Cancer Treatment from Centerwatch
Association of Cancer Online Resources from ACOR.org
Infection Control Plan for Outpatient Oncology Settings from the CDC
Communication
Caringbridge.org Provides Free Websites for People Facing Serious Health Events
Care Pages Websites for Patients to Communicate with Friends and Family
Resources from the Caregiver Action Network
Evaluating Vital Signs
Normal Pediatric Vital Signs from Med-Source
Adult Blood Pressure Range Diagram and Information from Vaughan’s Summaries
Health Care Data
Health Care Data Visualization from the General Electric Company Healthmagination Project
Healthcare Privacy
Medical Records Privacy Fact Sheet from the Privacy Rights Clearinghouse
