The Empowered Patient Coalition provides resources enabling patients to take control of their medical treatments.

Patient Advocate Directory

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The patient advocacy community is a diverse and vibrant network of individuals and independent organizations working toward the improvement of quality and safety in healthcare. There are many ways to approach the problems of our healthcare system, and it is worth noting that opinions within the patient advocacy community can and do vary broadly and intensely. The following list of patient-safety-related websites is presented solely as a resource for patients and friends of patients.  The appearance of a website on this page does not imply endorsement or agreement of any sort by The Empowered Patient Coalition or any other organization or individual on the list.

Email info@empoweredpatientcoalition.org to have your organization added to the list.

AdvocateDirectory.org is a comprehensive listing of grassroots, nonprofit, and other websites broadly related to patient safety and quality. It is a product of years of networking and research by individuals who reached out to each other, shared...
Welcome to The ARDS Foundation-- a charitable organization that offers support to families/victims of Acute Respiratory Distress Syndrome ARDS Foundation is a National Not for Profit Organization of volunteers who have been personally affected by...
Hi, my name is Giovanna, I live in Vancouver B.C. and want to make a documentary on "Preventable Medical Errors in Hospitals." If there are any of you out there who have suffered an adverse event in a Canadian or American hospital, a Care...
After 6 days being unwillingly made a human model for training purposes, our son Seth Speken died on August 27, 1993. His death was at the premier Ivy League teaching hospital, Columbia Presbyterian Hospital in the City of New York. This Web Site is...
Action against Medical Accidents (AvMA) is the independent charity which promotes better patient safety and justice for people who have been affected by a medical accident. A 'medical accident' is where avoidable harm has been caused as a result of...
The purpose of the Adam Susser Foundation is to improve the quality of life for children and adults with developmental disabilities and to assist those children and adults with developmental disabilities to attain appropriate educational and...
Collateral Damage -- A Patient, a New Procedure, and the Learning Curve. This is the story of what happened to my wife, Pam, at Johns Hopkins Hospital in March of 2002. I write this story for Pam because she endured so much...
Uncompensated advocates striving for quality safe care for all patients - all health care settings. Roberta Mikles, BA, RN, Director Ms. Mikles is also a World Patient Safety Day Committee Member and WPSD Legislative Action Committee Member....
Health Care Advocate (and professional nudge) 132 Kentucky Ave. SE Washington, D.C. 20003 202 547-7779 alanlevinedc@gmail.com Read about Alan Levine’s motivation and work at: ...
Alex’s Lemonade Stand Foundation (ALSF) for Childhood Cancer is committed to finding a cure for all children with cancer. The foundation operates on the principle introduced by our founder Alexandra “Alex” Scott - “when life...

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