The Empowered Patient Coalition provides resources enabling patients to take control of their medical treatments.

Parents of Infants and Children with Kernicterus was founded in late 2000 by a group of parents whose children suffer from kernicterus. A not-for-profit organization, PICK promotes awareness, prevention, and treatment of kernicterus. The organization’s success is due to a unique operational model that emphasizes active partnerships with healthcare institutions and agencies as a means of achieving change.

http://www.pickonline.org/